Living with a rare genetic disorder
Ehlers-Danlos Awareness Month marks rare hereditary syndromes that, if diagnosed early, can be managed to slow progression says University of Melbourne academic
Bringing answers to children with a little-known genetic condition
A University of Melbourne collaboration is helping to uncover the real needs and challenges of children and families facing a future with Usher Syndrome.
An unexpected upside of COVID
A University of Melbourne expert says for many with chronic illness, the shift to telehealth during the COVID-19 pandemic gives them more freedom and control.
COVID-19 face coverings mask the message
Many people have hearing loss – from mild to disabling – but University of Melbourne research finds COVID-19 face masks are making communication even harder.